Hi, my name is Bruce. I was diagnosed with copd, emphysema in 1999. I was unaware of the symptoms i was experiencing was copd. I grew up with asthma as a child so i have always been a little (short of breath) most of my life. Seems like symptoms would be worse while exercising or participating in sports activities. I quit smoking in 1990 after a 18 year pack a day habit. Both my parents were smokers so i was introduced to this at an early age not to mention the tv ads that were prolific during the 60's and 70's. I didn't quit smoking soon enough as the damage to my lungs by the time i quit were already moderately severe. Statistics show that quitting smoking has many health benefits providing you quit now, before the damage is done. I hope to reach as many people as possible with this message, Stop Smoking Now before the damage is irreversable, as in my case. By the way I was 43 years old when i was diagnosed. If you want to quit smoking there are lots of organizations that can help.
One place you can go to find help is at http://www.emphysema.net/bindex.html
This website has alot of information about copd and it is made up of folks with copd where we can email questions about symptoms, medicine, treatment, advocacy. It is called EFFORTS. Please use the link above and see how they can help you. I have been a member now for several years. The organization was started back in 1997 and here is an overview from the website.
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The origin of EFFORTS
In late November of 1997, Gary Bain, Mick Wagner (We lost Mick to our Lord on 1/20/2000) and Sharon Adkins, were members of another support group that did not allow advocacy. We had an idea that there might be interest in forming sort of a "members profile" site that would be accessible by the group. From there we typed up a questionnaire so we could compare notes with others in our "boat" so we would all know if we were "normal" in our disease.Things like;Was it common to lose bladder control a little, or our nose run, when we are panicky and out of breath?,What was causing us suddenly to become panicky?Were we receiving the same medicines and told that this was the best they could do?Were we told to "get our affairs in order"?Did we suddenly find everything stressful?,Did they send us to Pulmonary Rehab?Did they understand how we really felt?Were there better medicines and were our doctors aware of them?How long had we had the disease and how had it affected us individually?We started it in December of 1997 and it took off like gangbusters. Suddenly everyone was interested in completing the Questionnaire to see how they compared to others by actually comparing the Profiles in writing. We kept adding questions to it as well. It still is one of our favorite parts of our "family" and can be seen by clicking on Members Pages and Profiles . Early in March of 1998, we came upon the idea of forming an advocacy/activist group to find out what kind of research, if any, was being done specifically for our disease.
Since the previous list was only a support group, it was difficult to organize any type of activist group for emphysema since we were somewhat limited as to what we could post. It was then we felt that we could start another support group that also provided an activist side and begin fighting for more effective treatment and cure for our disease from what we had learned.So our list would be as fairly run as possible, we realized we needed other input to manage the new site.
Others, who were also active on the other list, came with us as Executive Board members. This gave us 5 folks to "run" the list with, allowing 5 to prevent tie votes in such matters important to the day to day activity of the list. We opened EFFORTS on May 6th 1998. Since then, we now have 9 members on our Executive Board.Several other folks joined us from the same support list, all wishing to also become activists. Several are still members of both lists. Many are active on our Teams in helping meet our goals.We have no commercial ties with any company. We are only people with Emphysema, we are only human. We are only humans with Emphysema. We are not multimillionaire's although we are an industry for many multimillionaire's. We are the "tired, the hungry, and the poor" in many ways.
We are self-funded, meaning that we have sufficient means to pay for our needs in maintaining the list. No company supplies us with funds, we take in nothing and spend very little except our precious time. As you will learn, we also are self sufficient by being completely voluntary. Each of us can help the other and many have in different ways. Limited though we may be, some have helped more than others.Our name includes the word Foundation. This hints to the fact that we may provide funds as other endowment type Foundations might. In fact, our Foundation means only that we are built from a solid base (and it was a word that worked in well with EFFORTS :>), (Emphysema Foundation For Our Right To Survive.).
We accept no contributions nor affiliations with any group that would compromise our integrity. This explanation is for our friends and new members, as well as those who were interested in just who we are and what are our intentions.
Our intentions are extremely simple. We hope to help direct more research into more effective treatment and hopefully a cure for emphysema and related lung diseases, teach fellow patients how to live with their new lifestyle, and teach others what it is like to have this disease and what can be done to help prevent it.If anyone has any questions, please feel free to contact any of us personally. Thanks for listening."
Gary Bain, President Frank Barrett, Vice President
Executive Board MembersJoan EspositoBeth McDonaldLinda Watson
About Me
- adamsfam
- 53 year old husband father of two wonderful kids grandfather of two amazing grandsons friend to all advocate for all
(MUST READ: HOW I WAS TOTALLY CURED OF EMPHYSEMA THROUGH HERBAL MEDICINE)
ReplyDeleteI was diagnosed of Emphysema in 2014, i was told the toxins in cigarette smoke caused the damage and it has no permanent cure but i was given medication to ease it, it affected me badly, my doctor suggested LVRS as i was constantly out of breath, this continued till i saw a post in a health forum about a herbal doctor from South Africa who prepare herbal medicines to cure all kind of diseases including Emphysema, i contacted this herbal doctor Dr Ejiro via his email and he sent me Emphysema herbal medicine via courier service, when i received this herbal medicine i applied it as instructed and was totally cured of Emphysema within 14 days of usage, i am totally free from emphysema now, contact Dr Ejiro via his email ejiroherbalcure@gmail.com or call him on +27616158179
(MUST READ)
ReplyDeleteI am Alexes Hayden, i purchased chronic obstructive pulmonary disease (COPD) herbal remedy from a herbal health clinic in South Africa (NewLife Herbal clinic), it really helped me. I was diagnosed of COPD in Elisabeth-bruyère Hospital Ottawa Canada in August 2014. In June 2016, I had COPD exacerbation, my condition worsened and the doctors could not help me, the Flovent HFA and antibiotics prescribed stopped working, it was a terrible experience i had, so my wife reached out for an alternative treatment. My wife's co-worker who had initially bought pulmonary fibrosis herbal remedy from New Life herbal clinic referred us to them for help. We contacted them via their website (www.newlifeherbalclinic.weebly.com) and purchased the COPD herbal remedy, i immediately commenced usage as soon as i received it, it worked miraculously, my airways are repaired. Visit www.newlifeherbalclinic.weebly.com or email newlifeherbalclinic@gmail.com
I did promised i will post my experience as many forums as possible if i am cured, that i am doing now
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I had COPD for 9 years. My first symptoms were dry cough, chest tightness and shortness of breath. My first chest x-ray only showed bronchitis. Finally I went to a pulmonologist and was diagnosed with COPD.i have used all the medication yet they don’t work, last year December I was told by a formal emphysema patient to use totalcureherbalfoundation@gmail.com herbal treatment which I really did,i was surprise the herbal products effectively get rid of my COPD totally. When you get where you cannot breathe it may be too late. Good luck to each and every one that will be trying their herbal treatment .
ReplyDeleteI am not sure of the cause of COPD emphysema in my case. I smoked pack a day for 12 or 13 years, but quit 40 years ago. I have been an outdoor person all my adult life. Coughing started last summer producing thick mucus, greenish tint to clear. I tried prednisone and antibiotics, but no change. X-rays are negative, heart lungs and blood and serum chemistries all are normal. I have lung calcification from childhood bout with histoplasmosis. I am 75 years old and retired.My current doctor directed me to totalcureherbsfoundation .c om which I purchase the COPD herbal remedies from them ,they are located in Johannesburg, the herbal treatment has effectively reduce all my symptoms totally, am waiting to complete the 15 weeks usage because they guaranteed me total cure.
ReplyDeleteI'm 59 years old and female. I was diagnosed a couple of months ago with COPD and I was beyond scared! My lung function test indicated 49% capacity. After having had flu a year ago, the shortness of breath, coughing and chest pains continued even after being treated with antibiotics. I've been smoking two packs a day for 36 years. Being born without a sternum caused my ribs to be curled in just one inch away from my spine, resulting to underdeveloped lungs. At age 34 I had surgery and it was fixed. Unfortunately my smoking just caused more damage to my already under developed lungs. The problem was having is that I enjoy smoking and don't want to give up! Have tried twice before and nearly went crazy and don't want to go through that again. I saw the fear in my husband and children's eyes when I told them about my condition then they start to find solution on their own to help my condition.I am an 59 now who was diagnose COPD emphysema which I know was from my years of smoking. I started smoking in school when smoking was socially acceptable. I remember when smoking was permitted in hospitals. It was not known then how dangerous cigarettes were for us, and it seemed everybody smoked but i was able to get rid of my COPD lung condition through the help of total cure herbal foundation my husband bought, totalcureherbsfoundation .c om has the right herbal formula to help you get rid and repair any lung conditions and cure you totally with their natural organic herbs. I wish anybody who starts smoking at a young age would realize what will eventually happen to their bodies if they continue that vile habit throughout their life.
ReplyDeleteAfter years of working in construction and smoking cigarettes,I was diagnosed with COPD and pulmonary fibrosis. As my illness progressed, I found myself relying on supplemental oxygen around the clock. Even getting out of bed became a challenge.My doctors and specialists recommended a lung transplant, but after researching the pros and cons of such a drastic procedure, I decided to try something less invasive. I contacted multivitamincare .org for organic natural treatment . Following the COPD and pulmonary fibrosis herbal treatment procedure , my lung function has improved dramatically after my first four weeks of the herbal formula .My quality of life has gotten a lot better. I was amazed that I could breathe without any dead air. I no longer need oxygen and look forward to continued improvement because a specialist told me already I have a 99% chance of getting my condition totally due to the herbal treatment effectiveness . If you or someone you love has COPD, pulmonary fibrosis or another chronic lung disease, and would like to see improvements like mine they even guarantee me totally cure once the treatment is done , contact multivitamincare .org today Call (or SMS): +1 (786) 544-5148,After years of working in construction and smoking cigarettes,I was diagnosed with COPD and pulmonary fibrosis. As my illness progressed, I found myself relying on supplemental oxygen around the clock. Even getting out of bed became a challenge.My doctors and specialists recommended a lung transplant, but after researching the pros and cons of such a drastic procedure, I decided to try something less invasive. I contacted multivitamincare .org for organic natural treatment . Following the COPD and pulmonary fibrosis herbal treatment procedure , my lung function has improved dramatically after my first four weeks of the herbal formula .My quality of life has gotten a lot better. I was amazed that I could breathe without any dead air. I no longer need oxygen and look forward to continued improvement because a specialist told me already I have a 99% chance of getting my condition totally due to the herbal treatment effectiveness . If you or someone you love has COPD, pulmonary fibrosis or another chronic lung disease, and would like to see improvements like mine they even guarantee me totally cure once the treatment is done , contact multivitamincare .org today Call (or SMS): +1 (786) 544-5148
ReplyDelete